Well, as many of you know that I decided to give up yelling for Lent. I kind of thought I was crazy, but I really wanted to do it. I will say that the first week was the most difficult. I caught myself several times and slipped twice. After the first week passed, it definitely became easier.
It's about 2 weeks post Easter and have I started yelling again? Yes, I have yelled some. I can honestly say that the hardest week was the one immediately following Easter. I failed many times in that week. My trigger during that particular week seemed to be hormonal, which has always been one for me.
What have I done to eliminate/reduce yelling?
1. I stop and take a deep breath. It sounds silly, but sometimes just taking the time to breathe before you respond can totally change the way you respond to a situation.
2. I started eliminating stressors in my life. In my case, my stressors were directly related to be over committed. It hasn't happened overnight, but I'm prayerfully eliminating things. Many of these things won't actually change until the next school year, but knowing change is around the corner has been helpful.
3. Making sure that I eat breakfast. I will admit that I am a horrible breakfast eater. I know that it is a terrible habit. I'm still not perfect on this one, but I know that low blood sugar and hunger are definite triggers for me. I'm also trying to add in a high protein snack during my mid day crash.
4. Trying to reduce my distractions AKA apple products. This is pretty hard because I try to keep my phone on me all day, so it is really easy to pick it up and start playing on Facebook or Instagram. I love reading blogs and researching and having my iPhone at my fingertips makes it really easy to do just that. However, by not using it as much during the day, I don't snap at my children nearly as much.
5. Offer grace rather than anger. To myself. To others. Everyone deserves grace. Again, I'm nowhere near perfect, but it is a start. During that breath that I'm taking, I try to ask myself if I'm showing grace in my reaction.
6. Getting more sleep. Because I'm a night owl, I often stay up way too late. My burst of energy comes after dinner time. My kids aren't super early risers, but they usually wake up between 7:30-8:00 am. I'm making an effort to get in bed by 11:00pm and allow myself 8 hours of sleep. When I'm awake until 2:00 am and waking 6 hours later, it catches up to me quickly. I can assure you that sleepyhead Alicia is grouchy and snarky. Also, the more I research, the more I think my sleep issues are hormonal...which brings me to my next point.
What else am I going to do?
I'm going to make some dietary changes. I had gone gluten free with my entire family last year and slowly started introducing it after about 6 months. I realize now that I really felt better when I wasn't consuming gluten. I'm also going to slowly cut out caffeine and sugar. This is going to be really difficult. I'm going to start in about two weeks, when I don't have as many early morning obligations. After doing some research, I think these three steps will help with my hormonal issues that cause so many mood swings for me. I have never officially been diagnosed with thyroid issues, but I have almost every single symptom of hypothyroidism and borderline TSH levels. I've been researching how to heal it with dietary changes and praying this will help the out of whack hormonal issues I deal with regularly. It also seems as if adrenal fatigue and hypothyroidism go hand in hand. Honestly, even if these are not issues, changing my diet won't hurt me at all. I don't expect this to be an easy change or a quick fix. I'm more focused on long term healing with these dietary changes.
1 Corinthians 6:19-20
19 Don’t
you realize that your body is the temple of the Holy Spirit, who lives
in you and was given to you by God? You do not belong to yourself, 20 for God bought you with a high price. So you must honor God with your body.
So there you have it. God really blessed me during this Lenten season. I truly feel that ending my Lenten journey with the Walk to Emmaus was such fabulous timing. It really gave me an opportunity to re-focus and re-prioritize. For my friends who dove into this challenge with me, I'd love to hear your feedback. What was hard for you? What changes did you make?
Showing posts with label stress. Show all posts
Showing posts with label stress. Show all posts
Monday, May 05, 2014
Monday, April 07, 2014
Jesus, Can I tell you how I feel?
"Jesus, Jesus,
Can I tell you how I feel?
You have given me Your Spirit.
I love you so."
These are the lyrics to a very simple song that I learned
this weekend at my Emmaus Walk. Those
lyrics now give me chills every time I sing them.
Guess what scripture was in my devotion this morning?
Psalm 27:8
My heart has heard you say , “Come and talk with me.”
And my heart responds, “Lord, I am coming.”
The purpose of this post is not really about my Emmaus
experience. I’m honestly still processing it as I haven’t even been back a full
day. I will say that the secrets and mysteries make sense. I guess you could
say I drank the kool-aid. I was insanely annoyed with almost everyone in the
Emmaus community before I left for my walk. It all makes sense now. It was a
magical experience for me. I experienced God’s love like I have never
experienced in my life. And what I felt was just a tiny portion of His love and
quite frankly that is overwhelming. Like I’m still kind of freaked out about
how much He loves me. I have a hard time accepting love and He revealed that to
me this afternoon as I was thinking about a certain part of my walk.
But the cool thing about this weekend….I was able to tell
Jesus how I have been feeling.
Friends, I’m burned out. That’s how I’m feeling. Burned out,
overcommitted, and not enjoying serving Him because I have my hands in too many
baskets. I started looking through some of my older blog posts, starting about
4 years ago. I was eager to find out where He wanted me to serve and praying
for new opportunities. I got so caught up in how good to felt to serve, that I
didn’t question any new service opportunities.
Before I even realized what happened, I was hanging at the end of the
rope and not sure what to do. I have so much going on that I barely have time
for my family and close friends (who fit in the family category for me) or my
own personal quiet time. That is not okay.
Here’s the thing. I love Jesus. I absolutely do. He is
freaking awesome. He gives me hope. He gives me courage. He carries me. I love
Him so much that I don’t want to let Him down. He’s done so much for me that I
can’t ever do enough to repay Him. But you know what? I don’t have to repay him. I can’t repay Him.
I just have to accept His love and grace. I don’t have to serve Him to repay
Him. I serve Him because I love others and I want them to see just a tiny
glimpse of His love. But I don’t have to
do everything. I’m not called to do everything. So, I’m going to chill out a
bit and start praying about the new opportunities that come along my path. It
may not be my time. One thing was loud
and clear to me over the weekend. I need to free up more time so that I can
spend more time in His word and then write about it. I also need to be careful and evaluate if I am
serving to please a person because I simply cannot say no, or if I am serving
because God wants me to do so. I’m a people pleaser. I always have been. I gave
that to Him this weekend. I’m excited to see how making these changes will
impact my walk with Him.
I continued reading in Psalm 27 and I came upon one of my
favorite verses.
Psalm 27:14
Wait patiently for the Lord.
Be brave and courageous.
Yes, wait patiently for the Lord.
Waiting patiently for Him is difficult. Really difficult. It
actually can really suck. I pretty much hate waiting. The beauty of it is that
He will give us patience. There are many things I’m waiting to understand right
now.
Lamentations 3:24-26
I say to myself, “The Lord is my inheritance; therefore, I
will hope in Him!
The Lord is good to those who depend on Him, to those who
search for Him.
So it good to wait quietly for salvation from the Lord.
Keep waiting and searching for Him. Be brave while you wait. He does not give us a spirit of fear. Keep telling Him how you
feel. He will reveal Himself to you in some pretty incredible ways.
Peace out, homies. Let me know if I can pray for you. It
would be an honor.
Wednesday, March 05, 2014
Lent 2014
I've been prayerfully considering my Lenten journey for the past week or so. This year I have decided to give up yelling.
First of all, it is quite embarrassing to admit that I need to give up yelling. By stating it, I am admitting that I have a problem with yelling.
The problem goes much deeper than just yelling. Allow me to explain.
I haven't always been a a yeller. I'm willing to bet that many people don't realize that I yell as much as I do. It has definitely become worse in the past few years. For the most part, I'm a pretty laid back person. This thing. This really ugly thing has entered my life. A thing called stress. Now, don't get me wrong. There has always been stress in my life. My stressors have exponentially grown in the past several years. I generally yell because I feel stressed and out of control. Guess who gets the brunt of my yelling? My family- and probably 95% of that is at my children.
In order to give up yelling, I've had to really think about why I yell. Yelling is a reaction. It is a reaction that I have defaulted because of chaos. I don't handle chaos well. When my children do not obey me, I yell. When I do not feel like my family is listening to me, I yell at them. When too many little people are talking to me at the same time, I yell. When I'm stressed about bills, medical stuff,
or selling our house, or my crazily packed schedule with very little "me" time, I respond by yelling. When I am in sensory overload, I yell. I finally realized that it is likely all of this stress probably isn't going anywhere anytime soon. However, one thing can be changed and that is me. I can only be changed through God's grace.
I have always yelled a wee bit, but I feel that it has progressively gotten worse since homeschooling. I've been thinking about that quite a bit too. I have no doubt that God's plan is for us to homeschool our children right now and honestly for long term (it has taken me awhile to admit that). However, committing to homeschooling means that I am always with my children. Because they are with me mostly 24/7, they see the good, bad, and ugly. They see all of my character flaws. We are very exposed. In this current season of my life I am not able to have very much alone time. I am an introvert and thrive on alone time. As a working mom, I was in a cubicle all by myself. Even though I had co-workers and customers calling, I still had periods of silence. I would often eat lunch at my desk to be alone. I usually had 30-60 minutes in my car by myself as well. I also only had one child at the time and he played by himself quietly and incredibly well. (Please know that I am in no way say mom's who work outside the house have it easier. I am simply explaining how the solitude I got in my particular situation was beneficial to my personality. I realize that isn't the case with everyone working mom. This was just my situation.) While on maternity leave with a newborn Kadie and having three year old Harrison at home with me ever day, I began to lose a bit of this solitude. Kadie was a fussy baby and Harrison was an incredibly challenging three year old. However, we began to figure out a rhythm and things got better and easier. I found bits and peaces of solitude again. When Harrison started kindergarten, I also put Kadie in Mom's Day Out twice a week. I had about 8 hours of time to myself each week. I generally spent that time running errands or cleaning, but I didn't have any little people dictating conversation or being loud. Then Sam was born and things changed again. We ended up pulling Kadie out of Mom's Day Out due to a tighter budget, so I had two little ones with me all of the time again. Then we decided to homeschool. The entire year of 2012 was difficult. Summer of 2012 was a particularly difficult one, especially for our marriage -and then I went straight into homeschooling. It was basically one stressor after another. And I got into the habit of yelling as a reaction rather than taking time to respond. So here we are...this is the path that lead to my yelling.
So because I have decided to give up yelling, there are many layers to this goal which will continue to unfold. I will have to continue to identify triggers and be very aware. I will have to really seek God's peace and self control, when I would have normally reacted by yelling. I will have to allow myself time to respond in an appropriate manner and that may mean walking away from a situation to allow myself time to process a situation. It may mean I have to reduce stressors in my life. Side bar, but sort of related - we are currently studying the fruits of the Spirit in our morning Bible time. This ties in wonderfully with my goal of no yelling and is a wonderful for character building my children. Next week we start self-control. It is all tying in beautifully for no other reason than God's perfect timing.
I've tried to do this no yelling thing several times and I've honestly never been successful. I've never tried it for Lent. Here is why I think it is different this year. I have a completely different mindset during Lent. I am more determined during the Lenten season. I also have been seeking joy this year and I feel like this is a huge piece of the puzzle. I want to be the old me. The me who didn't spaz out over ridiculous things. The happy little hippie that I truly am on the inside, but have let stress eat away at me. I anxious to see the transformed me in 6 weeks. I'm really excited about this, in case you can't tell!
Proverbs 15:1
First of all, it is quite embarrassing to admit that I need to give up yelling. By stating it, I am admitting that I have a problem with yelling.
The problem goes much deeper than just yelling. Allow me to explain.
I haven't always been a a yeller. I'm willing to bet that many people don't realize that I yell as much as I do. It has definitely become worse in the past few years. For the most part, I'm a pretty laid back person. This thing. This really ugly thing has entered my life. A thing called stress. Now, don't get me wrong. There has always been stress in my life. My stressors have exponentially grown in the past several years. I generally yell because I feel stressed and out of control. Guess who gets the brunt of my yelling? My family- and probably 95% of that is at my children.
In order to give up yelling, I've had to really think about why I yell. Yelling is a reaction. It is a reaction that I have defaulted because of chaos. I don't handle chaos well. When my children do not obey me, I yell. When I do not feel like my family is listening to me, I yell at them. When too many little people are talking to me at the same time, I yell. When I'm stressed about bills, medical stuff,
or selling our house, or my crazily packed schedule with very little "me" time, I respond by yelling. When I am in sensory overload, I yell. I finally realized that it is likely all of this stress probably isn't going anywhere anytime soon. However, one thing can be changed and that is me. I can only be changed through God's grace.
I have always yelled a wee bit, but I feel that it has progressively gotten worse since homeschooling. I've been thinking about that quite a bit too. I have no doubt that God's plan is for us to homeschool our children right now and honestly for long term (it has taken me awhile to admit that). However, committing to homeschooling means that I am always with my children. Because they are with me mostly 24/7, they see the good, bad, and ugly. They see all of my character flaws. We are very exposed. In this current season of my life I am not able to have very much alone time. I am an introvert and thrive on alone time. As a working mom, I was in a cubicle all by myself. Even though I had co-workers and customers calling, I still had periods of silence. I would often eat lunch at my desk to be alone. I usually had 30-60 minutes in my car by myself as well. I also only had one child at the time and he played by himself quietly and incredibly well. (Please know that I am in no way say mom's who work outside the house have it easier. I am simply explaining how the solitude I got in my particular situation was beneficial to my personality. I realize that isn't the case with everyone working mom. This was just my situation.) While on maternity leave with a newborn Kadie and having three year old Harrison at home with me ever day, I began to lose a bit of this solitude. Kadie was a fussy baby and Harrison was an incredibly challenging three year old. However, we began to figure out a rhythm and things got better and easier. I found bits and peaces of solitude again. When Harrison started kindergarten, I also put Kadie in Mom's Day Out twice a week. I had about 8 hours of time to myself each week. I generally spent that time running errands or cleaning, but I didn't have any little people dictating conversation or being loud. Then Sam was born and things changed again. We ended up pulling Kadie out of Mom's Day Out due to a tighter budget, so I had two little ones with me all of the time again. Then we decided to homeschool. The entire year of 2012 was difficult. Summer of 2012 was a particularly difficult one, especially for our marriage -and then I went straight into homeschooling. It was basically one stressor after another. And I got into the habit of yelling as a reaction rather than taking time to respond. So here we are...this is the path that lead to my yelling.
So because I have decided to give up yelling, there are many layers to this goal which will continue to unfold. I will have to continue to identify triggers and be very aware. I will have to really seek God's peace and self control, when I would have normally reacted by yelling. I will have to allow myself time to respond in an appropriate manner and that may mean walking away from a situation to allow myself time to process a situation. It may mean I have to reduce stressors in my life. Side bar, but sort of related - we are currently studying the fruits of the Spirit in our morning Bible time. This ties in wonderfully with my goal of no yelling and is a wonderful for character building my children. Next week we start self-control. It is all tying in beautifully for no other reason than God's perfect timing.
I've tried to do this no yelling thing several times and I've honestly never been successful. I've never tried it for Lent. Here is why I think it is different this year. I have a completely different mindset during Lent. I am more determined during the Lenten season. I also have been seeking joy this year and I feel like this is a huge piece of the puzzle. I want to be the old me. The me who didn't spaz out over ridiculous things. The happy little hippie that I truly am on the inside, but have let stress eat away at me. I anxious to see the transformed me in 6 weeks. I'm really excited about this, in case you can't tell!
Proverbs 15:1
A gentle answer deflects anger,
but harsh words make tempers flare.
Tuesday, May 15, 2012
I don't even know what to title this post
We are about 4 1/2 months into our journey with Aspergers. I have so much on my mind. I don't want my blog to only be about parenting a child with AS, but this is my blog and I generally write about what is on my mind. This is always on my mind.
I took a small break from reading books about it. Honestly, they made me feel hopeless and overwhelmed. I needed a break. Plus, I live with it everyday - so reading about it almost made it unbearable.
From what I understand about Aspergers, it will improve as he gets older as long as we give him the tools to understand his symptoms. So, it isn't so much that these symptoms just go away, but he will know how to manage them more appropriately. I feel like we are noticing more things because of A) our increased awareness of Aspergers and B) his own personal maturation, which is amplifying some of his symptoms. I also understand that stress can cause regression, which for Harrison would mean his obsessions get more intense and his impulses get harder for him to manage.
I'm back to my AS reading and I'm reading a really helpful book on parenting an AS child with sense of humor, because lets face it - you must keep your sense of humor. This book has really helped me feel a sense of relief. I'm not going to lie. I feel like a terrible mother on a pretty regular basis. Harrison has never been easy, so even before we were given his diagnosis, we did things differently with him. But what I'm realizing is that I do not really give myself any grace with parenting, especially with him. That has to stop. Now, let me be clear. I'm not saying that parenting a non-special needs child is easy. So please don't think that if you have only children without special needs, I think your life is a cake walk. That is not what I'm saying. What I'm finally now able to admit is that parenting a child on the spectrum is down right hard. It is exhausting. It is stressful. It may be unrewarding for long stretches of time. Parenting a child on the spectrum is different. I know. I have three children and I parent them very differently. Even though Kadie is not a special needs child, she is high needs (some might say high maintenance). She is very sensitive and isn't really easy, but it is different than it is with H. Sam, as of now, is easy. Now, his insatiable need to explore and climb is exhausting, but it is different. I want to stress that I think parenting is hard for anyone. It is challenging. I am just finally ready to admit to the world, I'm struggling. I feel like I'm sinking and I need love and support.
I'd like to give everyone a sneak peek into a stressful morning we had yesterday. I apologize for any grammatical errors. This is going to be long.
Home:
Monday mornings are our Occupational Therapy days. We go to Siskins every Monday at 8:30 and we have for about 6 weeks now. We don't take H to school prior to OT because it would be pointless, so Monday mornings are a little more relaxed for us because we have 30 extra minutes. Yesterday, we had a hard time getting moving because we went to bed later due to Mother's Day festivities. I'm not a morning person at all. It takes several cups of coffee to make me approachable. Harrison's biggest struggles are in the mornings. (For those of you who don't know, a common trait among Aspies is saying whatever is on their mind with no filter). He is downright rude and mean in the morning. He says what many of us think, but would never really say. I generally just tell him not to talk to anyone because he simply cannot be tactful in the morning. It causes fights and it is just easier that way. Even me knowing about his lack of filter doesn't make it easy. Let's face it. Words hurt. Kadie wakes up pretty chatty. She is annoying to me, and I don't have AS. So, I realize that she is almost intolerable to him. He just wants to be left alone and she just wants to talk to him. It honestly just isn't fair to either of them and it simply doesn't work. He doesn't have much tolerance for her, but mornings allow no wiggle room. My main job in the morning is to keep them from killing each other and to keep H on task for getting ready. Sam usually wakes up with a cheerful disposition, but yesterday he was GRUMPY. To make matters worse, I could not get him to wake, so I had to dress him on the fly and pack a to-go breakfast for him. There was no time for him to play or "hatch". Harrison was overtired on top of recovering from being sick (that should ready Aspie qualities are exacerbated due to stress of being tired & sick) Every word that had come from his mouth was pretty upsetting. I almost forgot to mention that I never had a chance to pour myself a cup of coffee. I did manage to prepare one for the road. I also forgot to mention that I woke up with a sore throat and itchy eyes, so I was already at a disadvantage.
The Drive:
So, we load into the van and we are already 5 minutes behind. Harrison and Kadie were arguing and Sam was fussing. I inform my older children that they are not to speak on our ride to Siskins. I explain to them I needed to make a phone call to let Siskins know we were running behind and they needed to take a break from talking to each other because they were not being nice and it was upsetting Sam. We had barely backed out of the driveway before Harrison was yelling to me that he really needed to tell me something important. I'm on hold to Siskins. I motion to him to be quiet. He keeps yelling. I lose my call because I accidentally hit "end". Try this again. Finally got a voicemail, so I leave a message that we are going to be slightly late with a yelling 7 year old and fussing toddler as my background music. I acknowledge H, so he will tell me his important issue. He goes on a rant about how he is angry with his teacher because of toy policy in the classroom, and he has been angry with her since October. (Side note: if an Aspie has a rant, they can't just let it go. They will not stop until they get it off their chest) I explain to him that it is acceptable to get angry but not to stay angry at someone. I briefly explain that harboring anger in our hearts is not healthy and makes God sad. I offer to pray with him about forgiveness and anger. He tells me that he thinks he will forgive everyone and that maybe we can pray later tonight. We ride the rest of the way in silence.
Siskins:
We get to Siskins and fortunately our being late didn't cause any issues. The waiting room was unusually packed. The thing about the waiting room at Siskins is that you have a whole myriad of special needs children in the waiting room. Kadie is very curious about why children are making unusual noises, or why they don't want to to play with her, or don't know how to play with her. I finally coerce her to read a book with me so that she will stop getting upset about all of the kids. Meanwhile, a lady leaves a cup of coffee unattended and Sam notices it instantly. He spills a large McDonald's coffee that was almost full all over the floor. The office had no towels and told us that we just needed to use paper towels from the restroom. This wouldn't have been a problem, except the only paper towel machine was the one that had a sensor and only spits out a small square of non-absorbent paper towel each time. Seriously? It literally took me and the other mom about 6 trips each with a giant handful of paper towels to wipe up the coffee. The whole time I'm wiping up this mess and running in and out of the restroom, Kadie is under my feet trying to help, and Sam is screaming because I took the coffee away from him. Then Harrison walks out with his OT and she is explaining the day's session and what he needs to work on. She also tells me that she thinks he needs to be evaluated by a pediatric PT because of some concerns she has about his lower extremities. We leave and I'm nearly in tears because I'm overwhelmed. I'm overwhelmed because of the morning we've had thus far. Add into that the added stress of one more treatment/therapy/evaluation Harrison needs that we probably can't afford. This was a wonderful year for our FSA to be canceled. So far we are looking at core strengthening therapy for H (taekwondo & stroking lessons - both of which are not covered under our insurance), an evaluation by a developmental vision specialist, and now a physical therapy evaluation. We haven't even started counseling/behavioral therapy for him yet.
The Parking Lot:
So, I'm forgetting God is with me. I'm forgetting that God is Peace and takes care of me. I'm brimming with tears walking down a sidewalk on Carter Street carrying Sam, while my older kids start running. They are heading straight for a busy area with cars. I'm pretty far behind them at this point and yelling for them to stop. Oh, I forgot to mention, it was raining and we didn't have an umbrella with us. After what seemed liked an eternity, they both finally stop running. So I am scolding them both for running away from me on a busy street & parking lot and them giving them directions on not stepping in puddles. Of course, they do not listen to me about the puddles and Kadie's boots are soaked. She doesn't deal well with uncomfortable clothing. She was upset about her boots. I tell her she isn't allowed to remove them until we get H to school, which is literally about 2-3 minutes away. Sam is fussing again and H is in his "we have to hurry to get to school because I hate being tardy" mode. I get the two younger children fastened in their car seats and get in my seat. My van won't start. What? This goes on for about 5 minutes, as I'm checking everything I know to check. This is the type of thing Harrison doesn't handle well. He realizes our car isn't starting and starts having a meltdown. I call my husband and we try to troubleshoot it. I'm trying my best to stay calm so my children don't feed off my emotions. We think it is a fuse or the starter. I call my mother-in-law to rescue us. She can come but is about 10-15 minutes away and had to quickly get ready. For at least half of our wait for her to arrive, H is having a monumental meltdown. He hates being tardy. He doesn't want to miss lunch. He doesn't want to miss work stations. There is no comforting him. Sometimes despite your best efforts, you cannot reason with an Aspie child. You just need to let them do their thing. I tried everything. Sweet Kadie was trying also. Sam was just crying because it was stressful. My mother-in-law arrives and we decided it would be easiest to put the booster in her car while she sits with the younger two kids in my van, so I can get him to school as soon as possible. She has a new car that she's had for just over a week (this is not irrelevant).
On the way to school/School:
The whole way to school Harrison insisted that we calculate the amount of hours she has had her new car. Converting days to hours is one of his latest obsessions. The thing about Aspies...sometimes their obsessions are endearing and fun. Normally I don't mind playing along, but I had no brain power in my head left to figure out how many hours my mother-in-law has had her new car. Math is not my strong suit. I was stressed. I was over it. I did NOT want to do math in my head. I just wanted to drop him off at school and figure out what we were going to do about my van. He was relentless. Needless to say in that 3 minute trip, we calculated the approximate amount of hours she has owned her new car and somehow managed to talk about ninjas (another obsession). We get into the office and he immediately tells the office staff:
"We're late. We're always late on Monday's. I have occupational therapy. But today after my therapy, our van wouldn't start. My note is only for occupational therapy because I have it every Monday. Mom always checks my pockets on Monday's. She doesn't check them on other days. I like to sneak toys to school on Monday's. So she checks my pockets. I hope I didn't miss lunch."
I'm sorry it took me so long to describe my morning. Kudos to you if you actually got through all of it. I realize that everyone has bad mornings. I'm not saying I'm unique in that. I'm just trying to post a glimpse of how having a child with Aspergers compounds a stressful morning into a monumentally stressful morning. This is where I'm having to teach myself it is okay to give myself grace. Six months ago, I would have beaten myself up over what I could have done differently. Now, that I'm understanding what makes H tick, I understand how an out of routine morning can set him off pace for the whole day. You see, our whole life has been like that with him. I just always thought he was an inflexible little old man and I could teach him to be more adaptable. I thought I was a terrible parent because of his inflexibility and my lack of ability to shape him towards flexibility. Now I realize it is just who he is. Life throws us curve balls. I'm not exactly the most flexible person either. Curve balls are hard for me. I try to put myself in his shoes. Curve balls knock my little guy completely off course.
Another reality in our life. Raising neurotypical children with your child on the spectrum. Neurotypical is a term you see the minute your child is diagnosed with a spectrum disorder to describe typically developing children/adults. Normal is not really an acceptable term to use for typical kids, because that implies that something is wrong with your child on the spectrum...something wrong rather than just different. How do you raise your children in the same home? How do you parent them all the way they need to be parented? It seems as if you are catering to the needs your AS child and completely negating the needs of your other children. One of the biggest hurdles we face right now is understanding H's sensory issues and what causes him to stim or meltdown. A big part of that is him dealing with his siblings. We've determined it is pretty important for him to always have his own room so that he can have a refuge. It isn't fair to make your other children stop talking, playing, dancing, or singing when your AS child can't handle it. But it isn't fair to him either. What do you do? It is hard. Then you have the struggle of giving your AS child all of the therapy and treatment he needs to have the best chances of functioning. Right now, financially, it is stressful and depressing. Harrison needs and will probably need a lot of therapy over the next several years. We can't even do it all for him right now. We have to pick and choose. There is a lot of guilt over that. Then you look at trying to just give your neurotypical children some extra curricular activities. When what seems like an extra curricular activity for H is actually therapeutic, it is hard to explain to your daughter why she isn't taking ballet lessons right now. It just doesn't seem fair to her. Thankfully the younger two are young and they don't really realize all of this right now.
On top of this stress, I have the question looming in my head - should I go back to work? Would it make things easier? We still would have two in daycare, so essentially I'm working to pay for daycare with very little left over. And what is left over probably isn't enough to justify the stress of me working full time. At least with me staying home, I'm here for sick kids. I'm here for the doctor's appointments. I'm here to cook the majority of the meals. I'm here to do the housework and cleaning (um, not my strongest area). There are a lot of expenses you incur when both parents are working that are convenience expenses or work related expenses. Eating out more often, gas expenses, work clothes, more doctor visits for sick kids due to daycare exposure, work related expenses..the list is actually pretty lengthy and we really considered all aspects when we made the decision to become a stay at home mom. I already feel like homeschooling H is where God is leading us and actually peace about the decision, so ultimately I know going back to work isn't an option, but sometimes it does seem like it would make things easier.
I feel like I get burned out more than my other parent friends. I feel like there is something wrong with me. Then I start reading this book I referred to earlier. The guy talks about how exhausting it is to raise a child with AS. He talks about how it is important to give yourself breaks because you are dealing with something that most parents don't have to deal with. I need to be able to escape the Aspie word on occasion and it is hard to do so. Do you know how relieved that made me feel? I feel such extreme guilt for feeling like I need a break. Quite frankly, with our current situation, neither one of us gets too many breaks. We have an almost non existent budget for childcare. Not only do we have a child with AS, but we have three children. We rarely go on dates. We rarely take time alone. It is tough and probably one of the biggest challenges that parents of children on the spectrum face. We can't just leave our children with anyone. Kids on the spectrum aren't comfortable with everyone. Plus, not everyone wants to deal with the possibility of a meltdown. If you aren't used to them, they can be scary. It is understandable. There was a point in my life I probably wouldn't have been comfortable watching a child that might have a meltdown. I get it. Plus I don't like asking for anything because I don't want to inconvenience others, so I don't. It makes me feel guilty. I know we have people that will help us and I need to be more willing to utilize those resources. I know that sometimes allowing someone to give me or Chris a break is actually blessing them, because it is something they are able to do for us. I need to get over my inability to let others help.
I think ultimately what has been troubling me the most, is the fact I can't "fix" my son. As someone who feels very deeply and I read people so well that I almost take on their mood, it is hard for me to fathom my son not being able to pick up on these social cues. How do I teach him? Can he ever be taught? Does it really matter? How do you teach your child not to sound like an ass when talking to someone? It really tears me up inside. I love him so much. He is such an awesome little guy. I know that people who take the time to get to know him will love him and accept him ,and that does give me comfort, but he won't always have that bubble. It is just scary sometimes.
I also realize that just 4 1/2 months into our journey with AS is still relatively short in the grand scheme of life. We are still processing it. We are still coming to terms with it. Each month brings new challenges and emotions. I'm also the type of person who really has to analyze and process things internally. It took me a good year if not longer to grieve the loss of my father, so I know I just need to give myself time.
This blog post was probably more of a journal entry for me. I realize that it is hard to follow and I only publish it because if my feelings can help someone, I want them to help someone. There are still emotions floating around inside of me that I can't quite identify yet. I did come across a quote that really reflects how I feel and I know beyond a shadow of a doubt why God called me to start Stephen Ministry training.
For those of you who have gotten this far, I thank you. I ask that you cover my family in prayer. If you would like specific prayer needs, I'm going to list them for you.
*Pray that we can keep a strong marriage. Pray that we make quality time for each other and not get bogged down in the messiness of life and forget our love for each other.
*Pray that we can parent each of our children how they need to be parented.
*Pray that we can use our life journey to minister to others.
*Pray for our finances. Pray that we can give Harrison the treatment he needs. Pray for discernment so that we can give him what he needs the most at the right time.
*Pray that our other children do not feel resentment or abnormal jealousy toward Harrison and that we can work together as a supportive family unit.
*Pray for peace for our family.
*Pray that we will utilize our village of support.
*Pray that keep Christ the center of our home and hearts.
I took a small break from reading books about it. Honestly, they made me feel hopeless and overwhelmed. I needed a break. Plus, I live with it everyday - so reading about it almost made it unbearable.
From what I understand about Aspergers, it will improve as he gets older as long as we give him the tools to understand his symptoms. So, it isn't so much that these symptoms just go away, but he will know how to manage them more appropriately. I feel like we are noticing more things because of A) our increased awareness of Aspergers and B) his own personal maturation, which is amplifying some of his symptoms. I also understand that stress can cause regression, which for Harrison would mean his obsessions get more intense and his impulses get harder for him to manage.
I'm back to my AS reading and I'm reading a really helpful book on parenting an AS child with sense of humor, because lets face it - you must keep your sense of humor. This book has really helped me feel a sense of relief. I'm not going to lie. I feel like a terrible mother on a pretty regular basis. Harrison has never been easy, so even before we were given his diagnosis, we did things differently with him. But what I'm realizing is that I do not really give myself any grace with parenting, especially with him. That has to stop. Now, let me be clear. I'm not saying that parenting a non-special needs child is easy. So please don't think that if you have only children without special needs, I think your life is a cake walk. That is not what I'm saying. What I'm finally now able to admit is that parenting a child on the spectrum is down right hard. It is exhausting. It is stressful. It may be unrewarding for long stretches of time. Parenting a child on the spectrum is different. I know. I have three children and I parent them very differently. Even though Kadie is not a special needs child, she is high needs (some might say high maintenance). She is very sensitive and isn't really easy, but it is different than it is with H. Sam, as of now, is easy. Now, his insatiable need to explore and climb is exhausting, but it is different. I want to stress that I think parenting is hard for anyone. It is challenging. I am just finally ready to admit to the world, I'm struggling. I feel like I'm sinking and I need love and support.
I'd like to give everyone a sneak peek into a stressful morning we had yesterday. I apologize for any grammatical errors. This is going to be long.
Home:
Monday mornings are our Occupational Therapy days. We go to Siskins every Monday at 8:30 and we have for about 6 weeks now. We don't take H to school prior to OT because it would be pointless, so Monday mornings are a little more relaxed for us because we have 30 extra minutes. Yesterday, we had a hard time getting moving because we went to bed later due to Mother's Day festivities. I'm not a morning person at all. It takes several cups of coffee to make me approachable. Harrison's biggest struggles are in the mornings. (For those of you who don't know, a common trait among Aspies is saying whatever is on their mind with no filter). He is downright rude and mean in the morning. He says what many of us think, but would never really say. I generally just tell him not to talk to anyone because he simply cannot be tactful in the morning. It causes fights and it is just easier that way. Even me knowing about his lack of filter doesn't make it easy. Let's face it. Words hurt. Kadie wakes up pretty chatty. She is annoying to me, and I don't have AS. So, I realize that she is almost intolerable to him. He just wants to be left alone and she just wants to talk to him. It honestly just isn't fair to either of them and it simply doesn't work. He doesn't have much tolerance for her, but mornings allow no wiggle room. My main job in the morning is to keep them from killing each other and to keep H on task for getting ready. Sam usually wakes up with a cheerful disposition, but yesterday he was GRUMPY. To make matters worse, I could not get him to wake, so I had to dress him on the fly and pack a to-go breakfast for him. There was no time for him to play or "hatch". Harrison was overtired on top of recovering from being sick (that should ready Aspie qualities are exacerbated due to stress of being tired & sick) Every word that had come from his mouth was pretty upsetting. I almost forgot to mention that I never had a chance to pour myself a cup of coffee. I did manage to prepare one for the road. I also forgot to mention that I woke up with a sore throat and itchy eyes, so I was already at a disadvantage.
The Drive:
So, we load into the van and we are already 5 minutes behind. Harrison and Kadie were arguing and Sam was fussing. I inform my older children that they are not to speak on our ride to Siskins. I explain to them I needed to make a phone call to let Siskins know we were running behind and they needed to take a break from talking to each other because they were not being nice and it was upsetting Sam. We had barely backed out of the driveway before Harrison was yelling to me that he really needed to tell me something important. I'm on hold to Siskins. I motion to him to be quiet. He keeps yelling. I lose my call because I accidentally hit "end". Try this again. Finally got a voicemail, so I leave a message that we are going to be slightly late with a yelling 7 year old and fussing toddler as my background music. I acknowledge H, so he will tell me his important issue. He goes on a rant about how he is angry with his teacher because of toy policy in the classroom, and he has been angry with her since October. (Side note: if an Aspie has a rant, they can't just let it go. They will not stop until they get it off their chest) I explain to him that it is acceptable to get angry but not to stay angry at someone. I briefly explain that harboring anger in our hearts is not healthy and makes God sad. I offer to pray with him about forgiveness and anger. He tells me that he thinks he will forgive everyone and that maybe we can pray later tonight. We ride the rest of the way in silence.
Siskins:
We get to Siskins and fortunately our being late didn't cause any issues. The waiting room was unusually packed. The thing about the waiting room at Siskins is that you have a whole myriad of special needs children in the waiting room. Kadie is very curious about why children are making unusual noises, or why they don't want to to play with her, or don't know how to play with her. I finally coerce her to read a book with me so that she will stop getting upset about all of the kids. Meanwhile, a lady leaves a cup of coffee unattended and Sam notices it instantly. He spills a large McDonald's coffee that was almost full all over the floor. The office had no towels and told us that we just needed to use paper towels from the restroom. This wouldn't have been a problem, except the only paper towel machine was the one that had a sensor and only spits out a small square of non-absorbent paper towel each time. Seriously? It literally took me and the other mom about 6 trips each with a giant handful of paper towels to wipe up the coffee. The whole time I'm wiping up this mess and running in and out of the restroom, Kadie is under my feet trying to help, and Sam is screaming because I took the coffee away from him. Then Harrison walks out with his OT and she is explaining the day's session and what he needs to work on. She also tells me that she thinks he needs to be evaluated by a pediatric PT because of some concerns she has about his lower extremities. We leave and I'm nearly in tears because I'm overwhelmed. I'm overwhelmed because of the morning we've had thus far. Add into that the added stress of one more treatment/therapy/evaluation Harrison needs that we probably can't afford. This was a wonderful year for our FSA to be canceled. So far we are looking at core strengthening therapy for H (taekwondo & stroking lessons - both of which are not covered under our insurance), an evaluation by a developmental vision specialist, and now a physical therapy evaluation. We haven't even started counseling/behavioral therapy for him yet.
The Parking Lot:
So, I'm forgetting God is with me. I'm forgetting that God is Peace and takes care of me. I'm brimming with tears walking down a sidewalk on Carter Street carrying Sam, while my older kids start running. They are heading straight for a busy area with cars. I'm pretty far behind them at this point and yelling for them to stop. Oh, I forgot to mention, it was raining and we didn't have an umbrella with us. After what seemed liked an eternity, they both finally stop running. So I am scolding them both for running away from me on a busy street & parking lot and them giving them directions on not stepping in puddles. Of course, they do not listen to me about the puddles and Kadie's boots are soaked. She doesn't deal well with uncomfortable clothing. She was upset about her boots. I tell her she isn't allowed to remove them until we get H to school, which is literally about 2-3 minutes away. Sam is fussing again and H is in his "we have to hurry to get to school because I hate being tardy" mode. I get the two younger children fastened in their car seats and get in my seat. My van won't start. What? This goes on for about 5 minutes, as I'm checking everything I know to check. This is the type of thing Harrison doesn't handle well. He realizes our car isn't starting and starts having a meltdown. I call my husband and we try to troubleshoot it. I'm trying my best to stay calm so my children don't feed off my emotions. We think it is a fuse or the starter. I call my mother-in-law to rescue us. She can come but is about 10-15 minutes away and had to quickly get ready. For at least half of our wait for her to arrive, H is having a monumental meltdown. He hates being tardy. He doesn't want to miss lunch. He doesn't want to miss work stations. There is no comforting him. Sometimes despite your best efforts, you cannot reason with an Aspie child. You just need to let them do their thing. I tried everything. Sweet Kadie was trying also. Sam was just crying because it was stressful. My mother-in-law arrives and we decided it would be easiest to put the booster in her car while she sits with the younger two kids in my van, so I can get him to school as soon as possible. She has a new car that she's had for just over a week (this is not irrelevant).
On the way to school/School:
The whole way to school Harrison insisted that we calculate the amount of hours she has had her new car. Converting days to hours is one of his latest obsessions. The thing about Aspies...sometimes their obsessions are endearing and fun. Normally I don't mind playing along, but I had no brain power in my head left to figure out how many hours my mother-in-law has had her new car. Math is not my strong suit. I was stressed. I was over it. I did NOT want to do math in my head. I just wanted to drop him off at school and figure out what we were going to do about my van. He was relentless. Needless to say in that 3 minute trip, we calculated the approximate amount of hours she has owned her new car and somehow managed to talk about ninjas (another obsession). We get into the office and he immediately tells the office staff:
"We're late. We're always late on Monday's. I have occupational therapy. But today after my therapy, our van wouldn't start. My note is only for occupational therapy because I have it every Monday. Mom always checks my pockets on Monday's. She doesn't check them on other days. I like to sneak toys to school on Monday's. So she checks my pockets. I hope I didn't miss lunch."
I'm sorry it took me so long to describe my morning. Kudos to you if you actually got through all of it. I realize that everyone has bad mornings. I'm not saying I'm unique in that. I'm just trying to post a glimpse of how having a child with Aspergers compounds a stressful morning into a monumentally stressful morning. This is where I'm having to teach myself it is okay to give myself grace. Six months ago, I would have beaten myself up over what I could have done differently. Now, that I'm understanding what makes H tick, I understand how an out of routine morning can set him off pace for the whole day. You see, our whole life has been like that with him. I just always thought he was an inflexible little old man and I could teach him to be more adaptable. I thought I was a terrible parent because of his inflexibility and my lack of ability to shape him towards flexibility. Now I realize it is just who he is. Life throws us curve balls. I'm not exactly the most flexible person either. Curve balls are hard for me. I try to put myself in his shoes. Curve balls knock my little guy completely off course.
Another reality in our life. Raising neurotypical children with your child on the spectrum. Neurotypical is a term you see the minute your child is diagnosed with a spectrum disorder to describe typically developing children/adults. Normal is not really an acceptable term to use for typical kids, because that implies that something is wrong with your child on the spectrum...something wrong rather than just different. How do you raise your children in the same home? How do you parent them all the way they need to be parented? It seems as if you are catering to the needs your AS child and completely negating the needs of your other children. One of the biggest hurdles we face right now is understanding H's sensory issues and what causes him to stim or meltdown. A big part of that is him dealing with his siblings. We've determined it is pretty important for him to always have his own room so that he can have a refuge. It isn't fair to make your other children stop talking, playing, dancing, or singing when your AS child can't handle it. But it isn't fair to him either. What do you do? It is hard. Then you have the struggle of giving your AS child all of the therapy and treatment he needs to have the best chances of functioning. Right now, financially, it is stressful and depressing. Harrison needs and will probably need a lot of therapy over the next several years. We can't even do it all for him right now. We have to pick and choose. There is a lot of guilt over that. Then you look at trying to just give your neurotypical children some extra curricular activities. When what seems like an extra curricular activity for H is actually therapeutic, it is hard to explain to your daughter why she isn't taking ballet lessons right now. It just doesn't seem fair to her. Thankfully the younger two are young and they don't really realize all of this right now.
On top of this stress, I have the question looming in my head - should I go back to work? Would it make things easier? We still would have two in daycare, so essentially I'm working to pay for daycare with very little left over. And what is left over probably isn't enough to justify the stress of me working full time. At least with me staying home, I'm here for sick kids. I'm here for the doctor's appointments. I'm here to cook the majority of the meals. I'm here to do the housework and cleaning (um, not my strongest area). There are a lot of expenses you incur when both parents are working that are convenience expenses or work related expenses. Eating out more often, gas expenses, work clothes, more doctor visits for sick kids due to daycare exposure, work related expenses..the list is actually pretty lengthy and we really considered all aspects when we made the decision to become a stay at home mom. I already feel like homeschooling H is where God is leading us and actually peace about the decision, so ultimately I know going back to work isn't an option, but sometimes it does seem like it would make things easier.
I feel like I get burned out more than my other parent friends. I feel like there is something wrong with me. Then I start reading this book I referred to earlier. The guy talks about how exhausting it is to raise a child with AS. He talks about how it is important to give yourself breaks because you are dealing with something that most parents don't have to deal with. I need to be able to escape the Aspie word on occasion and it is hard to do so. Do you know how relieved that made me feel? I feel such extreme guilt for feeling like I need a break. Quite frankly, with our current situation, neither one of us gets too many breaks. We have an almost non existent budget for childcare. Not only do we have a child with AS, but we have three children. We rarely go on dates. We rarely take time alone. It is tough and probably one of the biggest challenges that parents of children on the spectrum face. We can't just leave our children with anyone. Kids on the spectrum aren't comfortable with everyone. Plus, not everyone wants to deal with the possibility of a meltdown. If you aren't used to them, they can be scary. It is understandable. There was a point in my life I probably wouldn't have been comfortable watching a child that might have a meltdown. I get it. Plus I don't like asking for anything because I don't want to inconvenience others, so I don't. It makes me feel guilty. I know we have people that will help us and I need to be more willing to utilize those resources. I know that sometimes allowing someone to give me or Chris a break is actually blessing them, because it is something they are able to do for us. I need to get over my inability to let others help.
I think ultimately what has been troubling me the most, is the fact I can't "fix" my son. As someone who feels very deeply and I read people so well that I almost take on their mood, it is hard for me to fathom my son not being able to pick up on these social cues. How do I teach him? Can he ever be taught? Does it really matter? How do you teach your child not to sound like an ass when talking to someone? It really tears me up inside. I love him so much. He is such an awesome little guy. I know that people who take the time to get to know him will love him and accept him ,and that does give me comfort, but he won't always have that bubble. It is just scary sometimes.
I also realize that just 4 1/2 months into our journey with AS is still relatively short in the grand scheme of life. We are still processing it. We are still coming to terms with it. Each month brings new challenges and emotions. I'm also the type of person who really has to analyze and process things internally. It took me a good year if not longer to grieve the loss of my father, so I know I just need to give myself time.
This blog post was probably more of a journal entry for me. I realize that it is hard to follow and I only publish it because if my feelings can help someone, I want them to help someone. There are still emotions floating around inside of me that I can't quite identify yet. I did come across a quote that really reflects how I feel and I know beyond a shadow of a doubt why God called me to start Stephen Ministry training.
For those of you who have gotten this far, I thank you. I ask that you cover my family in prayer. If you would like specific prayer needs, I'm going to list them for you.
*Pray that we can keep a strong marriage. Pray that we make quality time for each other and not get bogged down in the messiness of life and forget our love for each other.
*Pray that we can parent each of our children how they need to be parented.
*Pray that we can use our life journey to minister to others.
*Pray for our finances. Pray that we can give Harrison the treatment he needs. Pray for discernment so that we can give him what he needs the most at the right time.
*Pray that our other children do not feel resentment or abnormal jealousy toward Harrison and that we can work together as a supportive family unit.
*Pray for peace for our family.
*Pray that we will utilize our village of support.
*Pray that keep Christ the center of our home and hearts.
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